Using the sliders below, select a number from 0 (absent) to 10 (worst imaginable) that best describes the severity of, or how much difficulty you have had with, each symptom during the past week.
(filling up quickly when you eat)
(widespread, not joint pain or arthritis)
(>37.8°C or >100°F)
Problems with concentration
(compared with before your MF or ET diagnosis)
Unintentional weight loss
(in the last 6 months)
To help you and your healthcare provider get a clear overall picture of how you feel with MF or ET, each of your scores for the above symptoms will be added up to calculate your total symptom score.
Use the additional space below to describe your general well-being over the past week or any other information you may want to discuss with your healthcare provider, such as what may be helping to alleviate or worsen symptoms, or how you cope with symptoms.
The MPN10 is a tool designed to help you assess how your MF- or ET-related symptoms are making you feel and impacting your day-to-day life, so that you can better describe these symptoms, and any changes in severity, to your healthcare provider. Your symptom score is important, and individual, to you. It is important to remember that patients may rate symptom severity differently.
When living with a chronic condition like MF or ET, it is important that you take an active role in monitoring your symptoms and discussing changes with your healthcare provider. Tell your healthcare provider if any of your symptoms become worse or more challenging for you, since this may indicate the need for a review of your current treatment or disease management plan.
The following questions may help you discuss your symptoms with your healthcare provider:
Reference: Mesa R, Miller CB, Thyne M, et al. Myeloproliferative neoplasms (MPNs) have a significant impact on patients’ overall health and productivity: the MPN Landmark survey. BMC Cancer. 2016;16(167):1-10.
This web application is intended for use as a resource and diary tracker for patients with polycythaemia vera. Information provided on this web application, including outputs from its interactive features, should not be considered an alternative to medical or management advice from your healthcare provider team.
This tool helps you track aspects
of your myelofibrosis (MF) or essential
thrombocythaemia (ET) so you are
prepared for discussions with your
healthcare provider and have a record
of your disease status over time.
Score your symptom severity as often
as you like.