FAQs
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Choose one device* (and one Web browser) you will use, and always use this device and browser when accessing the MPN10 site.
All of the data you enter, including your symptom scores and blood test results, are stored† on the device you are using.
Do not delete your browsing data; this will delete your previous entries. This means that you should not clear your history on the browser you use; otherwise you will lose the data you have previously entered.
* Device, meaning smartphone, tablet, or computer.
† Stored, meaning you always need to use the same device and Web browser to view your previous entries.
NOTE: Your personal health information remains on your device only, unless you choose to share it with your healthcare provider via the email option.
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You may use the MPN Tracker however often is necessary to effectively track your disease and communicate with your healthcare provider. For example, you may prefer to score your symptoms more often if you are newly diagnosed or have recently experienced a change in treatment.
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The World Health Organization has defined MPNs as cancers since 2008. However, it is important to remember that the symptoms and prognoses vary widely.
To learn more about MF, visit:
http://www.spotlightonmpn.com/patients/myelofibrosis/
To learn more about ET, visit:
http://www.spotlightonmpn.com/patients/essential_thrombocythaemia/
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Answer The TSS is a numerical value between 0 and 100 that is calculated by adding up the individual symptom scores you entered into the MPN10 Symptom Tracker. While a higher TSS may indicate a more severe symptom burden, this number alone is not a full picture of your overall health. Speak with your healthcare provider if you have any questions or concerns about your TSS. |
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When living with a chronic condition like MF or ET, it is important that you take an active role in monitoring your symptoms and discussing changes with your healthcare provider. Tell your healthcare provider if any of your symptoms become worse or more challenging for you, since this may indicate the need for alternative care management approaches.
The following questions may help you discuss your symptoms with your healthcare provider:
Why is it important to track or monitor my symptoms?
Are some symptoms more important to track closely than others?
How can I tell if the symptoms are due to my MPN or not?
What might it mean if my symptoms appear to resolve?
How can I better manage or track my symptoms?
What might worsening, or progressing, symptoms tell me about the status of my disease and my management options?
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How does my current disease-management plan help control my symptoms?
What lifestyle changes can I make to help ease my MF- or ET-related symptoms?
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Novartis has sponsored the creation of this tracker to help improve disease management for patients with MF or ET. Starting with the validated MPN10 symptom assessment form, Novartis partnered with patient advocacy organisations and medical experts to ensure the additional functions in this tracker are a useful resource and help patients living with MF or ET manage their disease. Novartis does not have access to any personal or identifying information of users, nor any of the data entered into the tracker.
This web application is intended for use as a resource and diary tracker for patients with MF or ET. Information provided on this web application, including outputs from its interactive features, should not be considered an alternative to medical or management advice from your healthcare provider team.
