MPN10: Track the severity of your PV-related symptoms
Using the sliders below, select a number from 0 (absent) to 10 (worst imaginable) that best describes the severity of, or how much difficulty you have had with, each symptom during the past week.
Instructions: Score your symptoms
The MPN10 is a tool designed to help you assess how your PV-related symptoms are making you feel and impacting your day-to-day life, so that you can better describe these symptoms, and any changes in severity, to your healthcare provider. Your symptom score is important, and individual, to you. It is important to remember that patients may rate symptom severity differently.
- Rate each symptom on a scale of 0 (absent) to 10 (worst imaginable) during the last 24 hours by selecting the one whole number that best describes how much difficulty you have experienced with that symptom.
- When you open the MPN10: Score Your Symptoms section, each symptom slider will be on the 0 (absent) as a default.
In the slider function for the PV symptom, use your computer mouse (desktop devices) or finger (mobile and tablet devices) to drag the blue cursor to the number you selected on the scale of 0 to 10. - After you have rated the severity of each symptom using the slider, each score will automatically be added together to calculate your MPN10 Total Symptom Score at the bottom of the page.
- Click or tap the “Save symptoms” button when finished. This will open a page displaying important questions regarding symptom monitoring to discuss with your healthcare provider, as well as options to move to the next portion of the tool.
symptoms
have been saved
What would you like to do next?
Maintain an open conversation with your healthcare provider about your symptoms and any changes you may experience in how you feel
When living with a chronic condition like PV, it is important that you take an active role in monitoring your symptoms and discussing changes with your healthcare provider. Tell your healthcare provider if any of your symptoms become worse or more challenging for you, since this may indicate the need for a review of your current treatment or disease management plan.
The following questions may help you discuss your symptoms with your healthcare provider:
- Why is it important to track or monitor my symptoms?
- Are some symptoms more important to track closely than others?
- How can I tell if the symptoms are due to my PV or not?
- What might it mean if my symptoms come and then appear to resolve?
- How can I better manage or track improving or worsening symptoms?
- What might worsening, or progressing, symptoms tell me about the status of my PV and my management options?
Reference: Mesa R, Miller CB, Thyne M, et al. Myeloproliferative neoplasms (MPNs) have a significant impact on patients’ overall health and productivity: the MPN Landmark survey. BMC Cancer. 2016;16(167):1-10.
These tracking tools are intended for patients with myeloproliferative neoplasms (MPNs) based in the United Kingdom. Information provided in these tools, including outputs, should not be considered an alternative to advice from a healthcare professional. Other versions of this website are not intended for UK users.
Reporting side effects: If you get side-effects with any medication you are taking, talk to your doctor, pharmacist or nurse. This includes any possible side effects not listed in the information leaflet that comes in the pack. You can report side effects via the Yellow Card Scheme at www.mhra.gov.uk/yellowcard (UK). By reporting side effects you can help provide more information on the safety of your medication.
UK | 241386 | October 2022
