MPN10: Track the Severity of your MF- or ET-related symptoms

Using the sliders below, select a number from 0 (absent) to 10 (worst imaginable) that best describes the severity of, or how much difficulty you have had with, each symptom during the past week.

?

Fatigue

Night sweats

Early satiety

(filling up quickly when you eat)

Pruritus

(itching)

Abdominal discomfort

Bone pain

(widespread, not joint pain or arthritis)

Inactivity

Fever

(>37.8°C or >100°F)

Problems with concentration

(compared with before your MF or ET diagnosis)

Unintentional weight loss

(in the last 6 months)

To help you and your healthcare provider get a clear overall picture of how you feel with MF or ET, each of your scores for the above symptoms will be added up to calculate your total symptom score.

Your score
00 /100

Use the additional space below to describe your general well-being over the past week or any other information you may want to discuss with your healthcare provider, such as what may be helping to alleviate or worsen symptoms, or how you cope with symptoms.

Save
symptoms
Your symptoms
have been saved

Maintain an open conversation with your healthcare provider about your symptoms and any changes you may experience in how you feel

When living with a chronic condition like MF or ET, it is important that you take an active role in monitoring your symptoms and discussing changes with your healthcare provider. Tell your healthcare provider if any of your symptoms become worse or more challenging for you, since this may indicate the need for a review of your current treatment or disease management plan.

The following questions may help you discuss your symptoms with your healthcare provider:

  • Why is it important to track or monitor my symptoms?
  • Are some symptoms more important to track closely than others?
  • How can I tell if the symptoms are due to my MPN or not?
  • What might it mean if my symptoms come and then appear to resolve?
  • How can I better manage or track improving or worsening symptoms?
  • What might worsening, or progressing, symptoms tell me about the status of my disease and my management options?

Reference: Mesa R, Miller CB, Thyne M, et al. Myeloproliferative neoplasms (MPNs) have a significant impact on patients’ overall health and productivity: the MPN Landmark survey. BMC Cancer. 2016;16(167):1-10.

These tracking tools are intended for patients with myeloproliferative neoplasms (MPNs) based in the United Kingdom. Information provided in these tools, including outputs, should not be considered an alternative to advice from a healthcare professional. Other versions of this website are not intended for UK users.

Reporting side effects: If you get side-effects with any medication you are taking, talk to your doctor, pharmacist or nurse. This includes any possible side effects not listed in the information leaflet that comes in the pack. You can report side effects via the Yellow Card Scheme at www.mhra.gov.uk/yellowcard (UK). By reporting side effects you can help provide more information on the safety of your medication.

 

ONC20-C108 / September 2020

This tool helps you track aspects of
your myelofibrosis (MF) or essential
thrombocythaemia (ET) so you are
prepared for discussions with your
healthcare provider and have a record
of your disease status over time.

Score your symptom severity as often
as you like.