MPN10: Track the severity of your PV-related symptoms
Fill out the form below to track the burden of your symptoms.
Using the sliders below, select a number from 1 to 10 (0 if absent) for each symptom. 1 is most favorable and 10 least favorable.
Instructions: Score your symptoms
The MPN10 is a tool designed to help you assess how your PV-related symptoms are making you feel and impacting your day-to-day life, so that you can better describe these symptoms, and any changes in severity, to your healthcare provider. Your symptom score is important, and individual, to you. It is important to remember that patients may rate symptom severity differently.
- Rate each symptom on a scale of 0 (if absent) to 10 by selecting the one whole number that best describes how much difficulty you have experienced with that symptom. 1 is most favorable and 10 least favorable.
- When you open the MPN10: Score Your Symptoms section, each symptom slider will be on the 0 (absent) as a default.
In the slider function for the PV symptom, use your computer mouse (desktop devices) or finger (mobile and tablet devices) to drag the blue cursor to the number you selected on the scale of 0 to 10. - After you have rated the severity of each symptom using the slider, each score will automatically be added together to calculate your Total Symptom Score at the bottom of the page.
- Click or tap the “Save symptoms” button when finished. This will open a page displaying important questions regarding symptom monitoring to discuss with your healthcare provider, as well as options to move to the next portion of the tool.
symptoms
have been saved
What would you like to do next?
Maintain open conversation with your healthcare provider about your symptoms and any changes you may experience in how you feel
When living with a chronic condition like PV, it is important that you take an active role in monitoring your symptoms and discussing changes with your healthcare provider. Tell your healthcare provider if any of your symptoms become worse or more challenging for you.
The following questions may help you discuss your symptoms with your healthcare provider:
- Why is it important to track or monitor my symptoms?
- Are some symptoms more important to track closely than others?
- How can I tell if the symptoms are due to my PV or not?
- What might it mean if my symptoms come and then appear to resolve?
- How can I better track improving or worsening symptoms?
- What might worsening, or progressing, symptoms tell me about the status of my PV?
References
1. Eman1.uel, RM, et al. Myeloproliferative neoplasm (MPN) symptom assessment form total symptom score: prospective international assessment of an abbreviated symptom burden scoring system among patients with MPNs. J Clin Oncol 2012;30(33):4098.
2.Mesa R, Miller CB, Thyne M, et al. Myeloproliferative neoplasms (MPNs) have a significant impact on patients’ overall health and productivity: the MPN Landmark survey. BMC Cancer. 2016;16(167):1-10.
This web application is intended for use as a resource and diary tracker for patients with myelofibrosis, polycythaemia vera, or essential thrombocythaemia . Information provided on this web application, including outputs from its interactive features, should not be considered an alternative to medical or management advice from your healthcare provider team.
